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Cystic fibrosis CF is a genetic disorder that affects mostly the lungs , but also the pancreas , liver , kidneys , and intestine. CF is inherited in an autosomal recessive manner. There is no known cure for cystic fibrosis. CF is most common among people of Northern European ancestry and affects about one out of every 3, newborns. The main signs and symptoms of cystic fibrosis are salty-tasting skin , [11] poor growth, and poor weight gain despite normal food intake, [12] accumulation of thick, sticky mucus, [13] frequent chest infections, and coughing or shortness of breath. As the children grow, they exercise to release mucus in the alveoli.

But as you just watched, it makes good TV.

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Stanford Hospital's Adult Cystic Fibrosis Clinic - Molly Pam's Story

Cystic Fibrosis Dating. Exchanging bacteria creates an infection and that can be deadly.

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Carol 2 years ago Report. How do you think about the answers? In their online conversations, one of the first things Dalton told Katie about himself was that he had Burkholderia cepaciaa horribly dangerous infection for people with CF.

Katie listened to her heart, even if it might hurt her lungs.

Doctor answers on Symptoms, Diagnosis, Treatment, and More: Dr. Fields on why cant cystic fibrosis patients date each other: Patients with cystic fibrosis are highly susceptible to lung infections. As a result, if they spend a lot of time together, they can readily swap infections. This is one case where you should shun your parents' otherwise good advice on sharing. for topic: . Dating and intimacy can be both desired as well as confusing, or even become quite complicated to navigate; certainly when trying to determine how or when to handle discussing cystic fibrosis with your new partner. Telling people you have CF is a personal choice, and you actually do not have to disclose it to every person you meet. The sad but true news is that cystic fibrosis patients do pose a threat to each other. That's because they carry specific types of antibiotic-resistent bacteria in their lungs that, if swapped.

She asked Dalton to come visit her in Flemingsburg, Kentucky. Katie and Dalton met in So on August 28,Dalton drove more than six hours from St. At pm - they remember the time precisely - Katie got out of her car and saw Dalton leaning against a brick wall looking cool and handsome in his sunglasses. Katie took Dalton and his mother, Renee, who'd made the trip with him, to have dinner with her and her parents, Debbie and John Donovan.

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Later the young couple drove around Flemingsburg, and Dalton gave her a necklace for her nineteenth birthday, which was two days before. Their health quickly deteriorated, and within months, the new husband and wife went on oxygen full time. Too ill to work, Dalton quit his job at his family's auto repair shop, and Katie quit hers as a store clerk.

In August,the couple entered the University of Pittsburgh Medical Center together to wait for new lungs.

Why two people living with cystic fibrosis cannot date each other?

Dalton's came first, and on November 17, he had his transplant. Despite his Burkholderia cepacia, which makes transplants more complicated, it was a success.

Mar 15,   Men with cystic fibrosis are also born without a vas deferens, the tube that delivers sperm from the testicles to the penis. And at least two thirds of CF patients . Feb 24,   An inherited condition, cystic fibrosis affects the cells that produce mucus, sweat and digestive juices. Normally, these secretions are thin and slippery, but in cystic fibrosis, a defective gene causes the secretions to become thick and sticky. Jul 05,   There are two infections which are particularly dangerous for CF patients - pseudomonas aeruginosas and burkholderia cepacia complex (or B. cepacia complex) - which can both be resistant to antibiotics. MORE: Gunnar Esiason talks about the risk of cross-infection between CF patients. Cystic Fibrosis News Today is strictly a news and information website .

The month after Dalton's surgery, UPMC discharged Katie - she says they told her it would be psychologically good for her to get out for a while. When she had serious trouble breathing three days later she tried to get back into the hospital, but UPMC informed her she'd used up her supply of Medicare days and wouldn't accept her.

Medicare - the federal insurance program for the elderly and for anyone with disabilities - wouldn't pay for another hospitalization until Katie had been out of the hospital for sixty days.

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But Katie was too sick to stay out of the hospital for six days, much less sixty. So Katie relied on Medicaid, public insurance that was supplied by her home state of Kentucky.

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She was admitted to the University of Kentucky Hospital, where she was cared for by Anstead, her beloved pulmonologist. But then, another hurdle.

Due to the risks of cross-infection, they knew they could never meet, but remained virtual friends. With the release of Hollywood film 'Five Feet Apart,' we're speaking to Oli and Mahi to find out what dating is really like for people with cystic fibrosis and how they handle some of . Apr 01,   Late one night on Facebook, a girl with cystic fibrosis messaged a boy with cystic fibrosis, and both their lives were changed forever. Late one night on Facebook, a . Cystic fibrosis patients dating each other - Register and search over 40 million singles: chat. Find single man in the US with footing. Looking for romance in all the wrong places? Now, try the right place. Rich man looking for older woman & younger woman. I'm laid back and get along with everyone. Looking for an old soul like myself. I'm a woman.

Anstead explained that most lung transplant centers, including the two in Kentucky, don't do transplants on patients with Burkholderia cepacia, referring them to larger centers like UPMC that have more experience with such complicated cases. Katie and Dalton, now 24 and 23, were desperate. Her doctors predicted she wouldn't live a year without new lungs.

Cystic fibrosis patients and dating

Katie Prager, in her current condition. Going on her husband's private insurance wasn't an option, since Dalton is on his father's policy. In February, Anstead wrote a letter to Medicaid, pleading with them to make an exception and pay for Katie's care at UPMC, even though it was out of state. Kentucky Medicaid denied his plea, and that's when the squabbling began.

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UPMC counters that Kentucky Medicaid told them that if they want to care for Katie, they would have to sign up hundreds of their doctors to accept Kentucky Medicaid patients. MORE: Eight tips for staying hydrated with cystic fibrosis.

People with CF are susceptible to infections and bugs which live in the lungs and because no two patients are exactly the same, they will be more likely to develop some infections over others. There are two infections which are particularly dangerous for CF patients - pseudomonas aeruginosas and burkholderia cepacia complex or B.

What's it like dating when you have CF?

Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment.

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This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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